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Finding an Open Source Cure for Brain Cancer

Hugh Pickens writes (1984118) writes | about a year and a half ago

Open Source 0

Hugh Pickens writes writes "Salvatore Iaconesi, a software engineer at La Sapienza University of Rome, writes that when he was recently diagnosed with brain cancer his first idea was to seek other opinions so he immediately asked for his clinical records in digital format, converted the data into spreadsheets, databases, and metadata files and published them on the web site called The Cure. "The responses have been incredible. More than 200,000 people have visited the site and many have provided videos, poems, medical opinions, suggestions of alternative cures or lifestyles, personal stories of success or, sadly, failures — and simply the statement, "I am here." Among them were more than 90 doctors and researchers who offered information and support." The geneticist and TED fellow Jimmy Lin has offered to sequence the genome of Iaconesi's tumor after surgery and within one day Iaconesi heard from two different doctors who recommended similar kinds of "awake surgery," where the brain is monitored in real time as different parts are touched and a brain map is produced and used during a second surgery. "We are creating a cure by uniting the contributions of surgeons, homeopaths, oncologists, Chinese doctors, nutritionists and spiritual healers. The active participation of everyone involved — both experts and ex-patients — is naturally filtering out any damaging suggestion which might be proposed," writes Iaconesi. "Send us videos, poems, images, audio or text that you see as relevant to a scenario in which art and creativity can help form a complete and ongoing cure. Or tell us, "I am here!" — alive and connected, ready to support a fellow human being.""

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